4 out of 5 individuals in the Bedouin community in Israel are estimated to be carriers of at least one genetic disease.
פי 5 יותר תינוקות בדואים ברחבי המזרח התיכון מתים ממחלות גנטיות בהשוואה למדינות ה- OECD.
Bedouins in Israel
5 times more Bedouin infants across the Middle East die from genetic diseases, as compared to OECD countries.
Every 1% decrease in the prevalence of genetic diseases will save the Israeli government $100 million in medical care and hospital costs.
The Whole of Israel
Bedouins in Israel
The infant mortality rate among Bedouins in Israel is >3 times the rate of Israel as a whole (11.4 deaths/1,000 live-births vs. 3.55 in Israel as a whole).
Of Bedouins in Israel
15% of the Bedouin community in Israel suffers from at least one severe genetic disease.
There are 21 million Bedouins in the Middle East, 300,000 of whom are in Israel. The Bedouin population in the Negev numbers 240,000 persons, or 34.8% of the Negev's population, and is of the lowest socio-economic status in the Israeli society.
Among the Bedouin community in Israel, up to 15% of people suffer from at least one severe genetic disease.
In the Bedouin population throughout the Middle East, there is an infant mortality rate of 20.7/1,000 live-births (vs. 4.57 in the OECD countries), and an estimated 3 million children suffering from genetic diseases - including heart defects, deafness, mental retardation, neurological disorders, and other severe disabilities. This is an extraordinarily high incidence of rare genetic diseases with a resultant toll in personal, medical, and economic costs. The major reason leading to this result is consanguinity (marriage inside the family).
Access to existing Israeli genetics related services is very limited because of numerous insurmountable barriers – distance, price, time, lack of knowledge and understanding of the system, to name a few.
Services that do exist are not culturally and linguistically adapted for the Bedouin population.